5 reliable websites for parents of children with cerebral palsy
by Rikke Damkjær Moen - Physiotherapist and Medical Manager on 06.07.2017
Finding reliable and useful resources on cerebral palsy can be a bit of a struggle. Here are five favourites–in no particular order–that you might find useful.
Though you can easily get lost among all the information on the internet, there are some terrific websites out there that will give you the latest news and information within the field of cerebral palsy (CP). Some even have newsletters that will drop in your inbox on a regular basis, making sure that you stay updated–for free.
1. Cerebral Palsy Alliance
Cerebral Palsy Alliance is an Australian organisation that aims to help people with CP, regardless of age, to live a comfortable, independent and inclusive life.
The organisation originally started off as The Spastic Centre of New South Wales in 1945 and was the first of its kind in the world. In other words, it’s an organisation with authority and lots of experience.
Australia is also, of course, renowned for its quality research within CP, so staying up to date on what’s happening “down under” is a pretty good idea!
The website is full of news and useful articles that will make you stay on top of the latest within CP research. It’s also got high-quality videos, making the articles lively and easy to digest.
Read also: Meet Ada - A girl with CP
CanChild is a Canadian non-profit research and educational centre. Unlike Cerebral Palsy Alliance, CanChild also focuses on various diagnoses, such as autism, down syndrome, and developmental coordination disorder.
At CanChild, you can find well-structured and easy to read information on the different diagnoses. If you want to dig deeper into the research, you’ll also find an own section on research in practice.
There’s also a very useful resources section with reports, videos, webinars, and studies.
Though it’s a well-structured site, there’s still a lot of information to digest, so it might seem a bit overwhelming at first. However, you can subscribe to CanChild’s newsletter, which lands in your inbox with a handy, monthly summary.
3. Cerebral Palsy Foundation
Cerebral Palsy Foundation is an American organisation that focuses on, as you might take from the name, CP.
As of today, it’s the largest non-government funder of CP research in the US.
What we like about the page is the nice visual design, which is easy to navigate and a little less intimidating.
You’ll find the news from the world of CP research, a video library with insights from experts and thought leaders, as well as useful fact sheets that are excellent to scroll through.
Read also: What is CP - A short guide
4. MyChild at Cerebralpalsy.org
Cerebralpalsy.org is an American organisation, aiming to give families with CP children the resources and support they need.
Though the service area of this organisation is within the US, the website still has a lot of useful information that you can use, regardless of where you’re located.
The “About Cerebral Palsy” section is full of definitions, information on risk factors and symptoms, treatments and therapies to name a few.
There’s also a section on inspiration, where you can find resources that can help you and your family find inspiration to live a fulfilling life with CP.
5. Cerebral Palsy Guidance
Our last recommendation goes to Cerebral Palsy Guidance, which is an American organisation that aims to help and guide parents of children with CP.
The site has several sections with thorough information on types, treatments, and symptoms related to CP, to name a few.
What we really like is the blog section where you’ll find inspiring pieces, many of them written by the excellent Alex Diaz-Granados, who’s a freelance writer with CP. Alex reflects on living with CP, often looking at his disability from a positive and encouraging angle.
There are of course many other websites out there that you might find interesting and useful, such as Cerebral Palsy News Today. We simply recommend to try a few of these sites for a short time, and then go with the ones you enjoy the most. Happy surfing!